Yesterday I did a presentation for NAMI Orange County on my recovery.
Yesterday I did a presentation for NAMI Orange County on my recovery.
i went to a conference today. There were 32 workshops..
the first i went to was on Borderline Personality Disorder. It was very informative and i learned a lot. The next was on support groups, that was good. There were a number of organizations represented.
the last one i went to was “ask the doctors” on schizophrenia. It was an open forum for people to comment, and ask questions. There were suggested questions on the screen.
one of the questions was, “what has worked for you?” I would have loved to hear the answers to that one.
one thing that worked for me, was talking to people with similar experiences, either on-line or in person. I went to dbsa support groups, nami connections and eventually started a group affiliated with the national organization, schizophrenia alliance. I don’t run the group anymore, but i am glad it is still going.
another thing, that is a little different, was when i was very troubled with auditory hallucinations, my psychiatrist found a way to communicate. He wrote words while he spoke, circling and crossing out important words.
no, one had asked what my experience was like when i had a psychotic break. They asked about symptoms, but not what were the voices saying or what the messages were. Not until i saw a therapist who seemed interested. It felt lke a relief to be able to tell my story.
i would love if anyone would share what has helped them
First published Psych Central
I have a thought and mood disorder called schizoaffective disorder. It is similar to bipolar disorder, in that I have mood swings with periods of mania and depression.
When I was treated for my first severe manic episode I was heavily sedated and slowly titrated down on the medications. When I got to a dosage where I was no longer sedated, and my symptoms were under control, I started to feel okay, good even.
It scared me. “Would I feel too good?” I voiced my concerns to my psychiatrist and he reminded me I usually have other symptoms that precede mania. I think most people do.
You could go through a list of symptoms and see which ones are typical for you that would be noticeable.
Do you spend a lot of money?
Are you impulsive?
Do you talk fast?
Do you start lots of projects?
A lot of people monitor their sleep. I often have trouble with insomnia, so that isn’t a particularly good indicator for me. One thing is that I get irritable. I am usually pretty mellow, so if I start snapping at people that is a good sign that something is off. My psychiatrist also told me if people are looking at me strangely that is a warning sign. I am not sure if he meant I do strange things or I get paranoid, which I do, and get suspicious.
Isn’t everyone entitled to an off day, though? Sometimes when I am upset at someone, it is for a good reason. A lot of people imagine others think poorly of them, once in a while.
It would help to have someone I trust, tell me if I didn’t seem right. I have trouble with trust, though, when I am symptomatic. I think everyone else has the problem and I am fine. I am working on that, because I know it is important. Otherwise, you can have a great list of warning signs, but deny them. “I’m not talking fast, you are just listening slowly”.
Once you notice these warning signs, what do you do? That is a million dollar question.
This is where it is best to consult with your doctor and find out when they want you to contact them.
It is good to catch things early, but you don’t want to be worrying every time you have a bad, or good, day.
Originally published Psych Central
With schizoaffective disorder and social anxiety, I have a number of different types of symptoms to cope with.
For me, psychotic symptoms can be the hardest to deal with. The first thing I turn to is medication. I have tried a few of the newer atypical anti-psychotics and fortunately, I respond well. It takes more than medication alone, though.
Some things that can help people cope with psychotic symptoms:
• Help from others– I have issues with fatigue and motivation. If someone can help me with chores: childcare, housecleaning, cooking it is a big relief.
• Music– Listening to music can help drown out voices.
• Cognitive Behavioral Therapy (CBT) – This is a type of therapy based on moving from distorted thinking to more rational thinking. It can be used to treat people with psychotic symptoms, but anyone can have distorted thinking.
• Asking– If I trust someone I can ask them to help me determine what is real.
• Acting “As If” – I can act like consensus reality (what everyone else believes) is real. The longer I do the more I start to believe it.
• Psychiatric Service Dogs– Dogs can be trained to perform specific functions that help with your disability.
• Technology– Apps like snapchat can be used to verify that what you are seeing is real.
My mood symptoms are varied. I rarely am euphoric. I am more typically irritable and paranoid. Or sad and anhedonic. But, I can be reckless and impulsive. Some things that help me with different mood symptoms. (There is overlap with the different coping skills):
• Support groups – A number of organizations have support groups for people with mental health conditions. Depression and Bipolar Support Alliance (DBSA) and National Alliance on Mental illness (NAMI) are two national organizationsOkay.
• CBT– like I mentioned above this is a type of therapy that helps with distorted thinking. Distorted thinking can lead to depression and CBT can help your mood.
• Acting against Impulse– This is a Dialectical Behavioral Therapy (DBT) technique. If your first impulse is to do something reckless, push yourself to do the opposite.
• Talk Therapy– This goes for all the sections, but if I am irritated at something specific my therapist can help me put it in perspective.
For now, I have my psychotic symptoms pretty well under control and my depressions are mild. I haven’t been manic in years. I am still plagued by anxiety. Here are some of my anxiety coping skills:
• Breathe– I take a deep breath and let it out slowly to help me calm down.
• Visualization– I picture an event coming up, going well and I don’t get so nervous about it.
• Routine– I take my medications and go to bed, wake up at the same time, plan for change ahead of time.
• Journaling– getting my thoughts out helps me to organize them and take some of the emotion out.
• Calling someone-talking to a friend helps me to not feel alone.
• Avoiding over-stimulation– Sometimes I just need quiet time. A big crowded place is too busy for me.
• Breaking Tasks into Pieces-If I try to take on a project all at once I freeze, but if I break it up into more manageable pieces I can get it done.
• Socialize- I tend to isolate which isn’t healthy so if I am invited out, I push myself to go. I usually have at least an okay time, it is just getting out the door.
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My experience and reality of psychosis