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corona virus pandemic psychosis schizoaffective schizophrenia

When Psychotic disorders and Pandemics Collide

I have been stable without any major psychotic symptoms for 15 years. I have not been hospitalized since 2005. This week my head is spinning.

I don’t know whether the pandemic is a delusion, everyone tells me it is real, if people are playing tricks on me. I only have what I get on social media, I am staying home except for essentials. Part of me thinks this whole thing was planned but got bungled

I talk to my family and people online. They tell me it was a mutation of a virus. Natural. That I should keep staying home and washing hands. I am scared. Had a cold that turned into a sinus infection that is mostly cleared up. My dr okayed for me to go back to work mon. Now, that i am physically ready I am not sure about mentally.

I am terrified I will get sick and inadvertently cause an outbreak at work or home. I am not sick now. Called my psychiatrist and left a message, hopefully I can talk with him mon. I had just scaled back on therapy because things were going well. I contacted and will make phone appointment

People tell me to stay away from social media, but how would I have known about this. I want to be informed. I feel dizzy. Maybe I am hyperventilating I am anxious.

I walked the dog with my husband keeping distance from others. I ordered a #cameo from a great comedian @DarrenCarter

My plan is to go into work mon until I talk to psychiatrist to get his thoughts. So, this weekend is staying close to home, which I do anyways,

I am scared

Categories
DBT life lessons mental illness psychosis Recovery schizophrenia stigma Uncategorized

How to Talk to a Person: my response to how to talk to people with X disorder

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You have seen the articles. How to talk to a schizophrenic or how to deal with someone with borderline personality disorder as examples.

I am not saying they do not have useful observations. After all, these are published by practitioners with much experience. Having contracts in a therapy relationship and firm boundaries is normal. Controlling your partner is not.

I just read such an article by Nancy Carbone, a couples therapist in Australia. It is a year old and I don’t mean to point a finger at her, it is just an example. I don’t happen to have a BPD diagnosis. I do not like articles on how to deal with other types of people, clumping us all together.

The first thing you should do, if you want to communicate with people is learn active listening and other communication skills. Maybe, if you pay attention to what you may consider nonsense, you will see there is more there.

If the articles on schizophrenia were about actually trying to communicate, like writing the key points down if the person is distracted by voices, I would not dislike these articles so much. That is not what these are about, though. It is “tough love” or I know what is better for you. It is about dealing with someone who is flawed and somehow that makes you superior.

I welcome comments. Sometimes I have knee jerk reactions and if I am off-base I want to know.

Categories
Coping skills DBT mental illness psychosis Recovery relapse schizoaffective schizophrenia support groups Uncategorized

Mental Health Conference

i went to a conference today. There were 32 workshops..

the first i went to was on Borderline Personality Disorder. It was very informative and i learned a lot.  The next was on support groups, that was good. There were a number of organizations represented.

the last one i went to was “ask the doctors” on schizophrenia. It was an open forum for people to comment, and ask questions. There were suggested questions on the screen.

one of the questions was, “what has worked for you?”  I would have loved to hear the answers to that one.

one thing that worked for me, was talking to people with similar experiences, either on-line or in person. I went to dbsa support groups, nami connections and eventually started a group affiliated with the national organization, schizophrenia alliance. I don’t run the group anymore, but i am glad it is still going.

another thing, that is a little different, was when i was very troubled with auditory hallucinations, my psychiatrist found a way to communicate. He wrote words while he spoke, circling and crossing out important words.

no, one had asked what my experience was like when i had a psychotic break. They asked about symptoms, but not what were the voices saying or what the messages were. Not until i saw a therapist who seemed interested. It felt lke a relief to be able to tell my story.

i would love if anyone would share what has helped them

 

 

Categories
Donation Marrow mental illness psychosis schizoaffective schizophrenia stigma Uncategorized

You May Not Be a Match

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I was removed from the bone marrow registry when I updated my health information. They sent me an email saying they have volunteers and it was a safety issue. I didn’t think about it until someone mentioned they were turned down to donate blood because they have schizophrenia. It is not the medications we take that are the problem. They fear we are a danger.

I was not really looking forward to donating, but with waiting lists it seems like they would not want to turn people away.

Give the gift of #stigma

I can understand that I can’t purchase life insurance. My diagnosis is associated with committing suicide. I am not unreasonable. But, assuming I am dangerous without asking any questions besides my diagnosis is infuriating

 

Categories
bipolar mental illness motherhood parenting psychosis schizoaffective schizophrenia

Mothering and Mental illness

Originally posted on Psych Central

https://blogs.psychcentral.com/triple-winner/2017/03/parenting-and-mental-illness/

It is natural to wonder if you are a “good enough” mother. This can be amplified with mental illness.

My children were ages 2 and 4 when I had a psychotic break. I was hospitalized twice that year After that, I needed help doing basic tasks for a while. Even when I got back on my feet, I was not 100%.

I was too tired to take my son to the park and too anxious to make play dates. My daughter didn’t have the “supermom” some of her friends seemed to have. She has me. And, I try. But, I feel like they got a raw deal.

And there was more. I would get paranoid they were going to get harmed and not want them to see certain people. I was almost constantly distracted by voices and delusions of messages and not nearly as attentive as I could have been.

They didn’t understand that I had a mental illness called schizoaffective disorder. I had planned to answer questions as they asked, but they didn’t ask much. My daughter once questioned why I was making a sign for a National Alliance on Mental Illness (NAMI) class. I told her it was because I had a mental illness. She just said “I didn’t know that “and went back to playing.

They know I take medication and I am tired often. I didn’t want them to worry it was something else, and it seemed time we talked about it, so one day I told them. My son did not know, my daughter knew already. Neither of them wanted to hear any more.

I worried my behavior would affect them. That they would have some problems because of me. But, they are the best kids. They have friends, do well in school, are active. I need to give credit to the other people in their lives: my husband, their grandma, teachers, other parents. They picked up where I couldn’t.

I was fortunate. I had my children before I was diagnosed, so I didn’t have to worry about medications and pregnancy. That can get complicated and needs involvement with your psychiatrist and obstetrician.

Schizoaffective disorder has a genetic component. Not everyone has a relative with a psychotic disorder, but it isn’t unusual. That is another of my worries. Will I pass this illness on to my children? So far, that hasn’t been an issue.

I have a lot of “what if’s” about my mental illness. If I had known I had it before I had a psychotic break would we have had children? Would my husband have married me? I don’t know. I like my life and I can’t imagine it any differently than the way it is now

Categories
anxiety bipolar Coping skills life lessons mental illness psychosis schizoaffective

Coping With Schizoaffective Disorder

Originally published Psych Central
https://blogs.psychcentral.com/triple-winner/2017/03/coping-with-my-mental-health-symptoms/

With schizoaffective disorder and social anxiety, I have a number of different types of symptoms to cope with.

For me, psychotic symptoms can be the hardest to deal with. The first thing I turn to is medication. I have tried a few of the newer atypical anti-psychotics and fortunately, I respond well. It takes more than medication alone, though.

Some things that can help people cope with psychotic symptoms:

• Help from others– I have issues with fatigue and motivation. If someone can help me with chores: childcare, housecleaning, cooking it is a big relief.
• Music– Listening to music can help drown out voices.
• Cognitive Behavioral Therapy (CBT) – This is a type of therapy based on moving from distorted thinking to more rational thinking. It can be used to treat people with psychotic symptoms, but anyone can have distorted thinking.
• Asking– If I trust someone I can ask them to help me determine what is real.
• Acting “As If” – I can act like consensus reality (what everyone else believes) is real. The longer I do the more I start to believe it.
• Psychiatric Service Dogs– Dogs can be trained to perform specific functions that help with your disability.
• Technology– Apps like snapchat can be used to verify that what you are seeing is real.

My mood symptoms are varied. I rarely am euphoric. I am more typically irritable and paranoid. Or sad and anhedonic. But, I can be reckless and impulsive. Some things that help me with different mood symptoms. (There is overlap with the different coping skills):

• Support groups – A number of organizations have support groups for people with mental health conditions. Depression and Bipolar Support Alliance (DBSA) and National Alliance on Mental illness (NAMI) are two national organizationsOkay.
• CBT– like I mentioned above this is a type of therapy that helps with distorted thinking. Distorted thinking can lead to depression and CBT can help your mood.
• Acting against Impulse– This is a Dialectical Behavioral Therapy (DBT) technique. If your first impulse is to do something reckless, push yourself to do the opposite.
• Talk Therapy– This goes for all the sections, but if I am irritated at something specific my therapist can help me put it in perspective.

For now, I have my psychotic symptoms pretty well under control and my depressions are mild. I haven’t been manic in years. I am still plagued by anxiety. Here are some of my anxiety coping skills:

• Breathe– I take a deep breath and let it out slowly to help me calm down.
• Visualization– I picture an event coming up, going well and I don’t get so nervous about it.
• Routine– I take my medications and go to bed, wake up at the same time, plan for change ahead of time.
• Journaling– getting my thoughts out helps me to organize them and take some of the emotion out.
• Calling someone-talking to a friend helps me to not feel alone.
• Avoiding over-stimulation– Sometimes I just need quiet time. A big crowded place is too busy for me.
• Breaking Tasks into Pieces-If I try to take on a project all at once I freeze, but if I break it up into more manageable pieces I can get it done.
• Socialize- I tend to isolate which isn’t healthy so if I am invited out, I push myself to go. I usually have at least an okay time, it is just getting out the door.