My observable symptoms: responding to internal stimuli, inappropriate laughter, mood swings are the tip of the iceberg. You can’t see the hallucinations, delusions, loneliness and the pain.
When I had my first psychotic break, no one around me noticed. I am married and was working. People asked me if I was sad. I was isolating, and they can’t know what is going on inside your mind. (Although, at times i have believed people could know my thoughts).
Now, it is hard to tell if I am isolating or just following stay home orders.
I have been stable for years. Sometimes, I worry i will have another break, but hopefully we (my husband and I) will be able to recognize it and act quickly.
I have a form of schizophrenia and people have been suggesting my fears are delusions, but some things are obviously true.
I am in the USA. Our president is playing games with state governors for medical equipment and supplies. If they don’t compliment, praise him in the media so he can win votes he won’t order supplies, He buys them up, or tells vendors not to sell to them. I am talking ppe and ventilators, test kits. Even if we have more tests available someone has to obtain sample and needs ppe. He has kept testing low to keep numbers of reported cases low and people don’t take the mitigation policies seriously.
He suggested that our elders and high risk people are expendable. Worth the “sacrifice” for Wall Street. Hospitals are deciding who should get first choice of ventilators, who not to resuscitate, They will choose to give up on the disabled. I don’t know where I fall in those discussions. I have loved ones that would die. All we can do is try to hide from the virus.
Our president only thinks of money and power, has no humanity, I feel helpless and the ones in power are moving really slowly. We let him become above the law.
His followers don’t care he is killing them and us. They are blinded. You would think when it is affecting you, personally, you would wake up, but no. There is so much propaganda, the media perpetuates it. He lies on tv and they still play it.
I feel like I am in a simulation (that is my mental illness) and just want it to end. I worry about myself and those around me. This virus is so infectious. I am in CA. Our governor says they predict over 50% of us over the year. I think it is inevitable I will catch it, just don’t know when. He also said maybe 12 more weeks of stay home order. People complain of boredom. If that is the main complaint that is ideal in a pandemic.
I just go to work and home. I work in a residential mental health facility. My views are my own not my employer, we need to put disclaimers. We take our temp before shift and resident vitals daily. So far the residents are restless but healthy. It is an 80 bed facility. It would be a disaster if we get an outbreak. No visitors, no packages, stay on site.
I am scared. I try to distract myself. I watch tv shows and go on social media. I do not watch our president talk, it just makes me upset. Our governor is calming. It is bad news but I feel like he is a good leader. My mom and mother in law are high risk and stay inside. Mother in law is alone. she gets lonely. We call everyday but I wish we could do more. She has not figured out video meetings yet. I wish I could just go there and show her, but if I could we would not need it. My mom gets frustrated with technology,
My husband is still working, too. He works in communications for the school district. All teaching is online now, so that is important. He goes to grocery store and anything we need. I really don’t want him to get sick. There is a shortage of masks so they told us not to wear them. I think that recommendation will change soon, I see people say how to make them but it is too complicated for me.
My children are 18 and 21. My daughter is home from college and everything is online. My son is a senior in high school. It is hard from him being away from his friends. He is no longer working, youth sports, because it is cancelled. He interacts with his friends online or goes out for a drive alone.
I had a cold that turned into a sinus infection and saw a doc via telemedicine, I recommend highly. there are so many things that are now accommodated for and I hope that continues after this is all over.
I like Biden for President. He has compassion. I don’t care to debate. This is all my opinion,
Men keep sliding into my DMs. I am not used to this. I am happily married,. I can follow on social media without messaging. It makes me uncomfortable. You can message me anything important, like how to protect myself and others, but I won’t respond generally to chit chat.
I have been stable without any major psychotic symptoms for 15 years. I have not been hospitalized since 2005. This week my head is spinning.
I don’t know whether the pandemic is a delusion, everyone tells me it is real, if people are playing tricks on me. I only have what I get on social media, I am staying home except for essentials. Part of me thinks this whole thing was planned but got bungled
I talk to my family and people online. They tell me it was a mutation of a virus. Natural. That I should keep staying home and washing hands. I am scared. Had a cold that turned into a sinus infection that is mostly cleared up. My dr okayed for me to go back to work mon. Now, that i am physically ready I am not sure about mentally.
I am terrified I will get sick and inadvertently cause an outbreak at work or home. I am not sick now. Called my psychiatrist and left a message, hopefully I can talk with him mon. I had just scaled back on therapy because things were going well. I contacted and will make phone appointment
People tell me to stay away from social media, but how would I have known about this. I want to be informed. I feel dizzy. Maybe I am hyperventilating I am anxious.
I walked the dog with my husband keeping distance from others. I ordered a #cameo from a great comedian @DarrenCarter
My plan is to go into work mon until I talk to psychiatrist to get his thoughts. So, this weekend is staying close to home, which I do anyways,
I was not sure what to choose for an “S” word, but this disorder affects my whole life. Also, most people have never heard of it.
Schizoaffective is basically a combination of a thought disorder, like schizophrenia and a mood disorder, like bipolar. There is controversy about the diagnosis. It can resemble bipolar with psychotic features except you have weeks of psychotic symptoms while not in a mood state (manic or depressed). Or, it can seem like schizophrenia with depression. There are 2 types, bipolar type and depressive type. I have the bipolar type and have had mania.
I had years of psychotic symptoms, it was either a long episode with periods of insight and lucidity, or a number of relapses. It all is rolled together in my mind. But, once I got on a good medication cocktail (I take several types), I have not had the severe symptoms. Now, I am more troubled by fatigue, anxiety and milder depressions.
Prognosis varies. I am married, have children, work part time. I had a psychotic break at 39. I know nothing about dating with a diagnosis or pregnancy and psych meds. Mental illnesses can be hard on marriages. We were married for 7 years before I was diagnosed. Fortunately, my husband is supportive and understanding.
I see a psychiatrist, a therapist, and go to a support group for mood disorders. Some good resources can be found through the National Alliance for Mental Illness NAMI.org and depression and bipolar support alliance dbsa.org.
You have seen the articles. How to talk to a schizophrenic or how to deal with someone with borderline personality disorder as examples.
I am not saying they do not have useful observations. After all, these are published by practitioners with much experience. Having contracts in a therapy relationship and firm boundaries is normal. Controlling your partner is not.
I just read such an article by Nancy Carbone, a couples therapist in Australia. It is a year old and I don’t mean to point a finger at her, it is just an example. I don’t happen to have a BPD diagnosis. I do not like articles on how to deal with other types of people, clumping us all together.
The first thing you should do, if you want to communicate with people is learn active listening and other communication skills. Maybe, if you pay attention to what you may consider nonsense, you will see there is more there.
If the articles on schizophrenia were about actually trying to communicate, like writing the key points down if the person is distracted by voices, I would not dislike these articles so much. That is not what these are about, though. It is “tough love” or I know what is better for you. It is about dealing with someone who is flawed and somehow that makes you superior.
I welcome comments. Sometimes I have knee jerk reactions and if I am off-base I want to know.
I just finished watching a movie on Netflix called Brain on Fire. I am going to post spoilers so if you have not watched it, go, get the book if you can’t get the movie. Don’t forget to come back.
I have trouble watching shows. If they don’t hold my attention, I do something else. This was one I watched all the way through.
It is a true story of a young woman who gets ill and no one knows the cause. All the tests are normal. The Drs suggest that she is working and partying too hard. Later they come up with bipolar and schizophrenia. She has seizures, acts manic, gets catatonic. It is a mystery.
A specialist is brought in. He has her draw a clock and she only daws numbers on one side. Then he knows there is something wrong with one side of her brain. They do a biopsy of her brain, which they made it look like a simple procedure.
The results come back and she is diagnosed finally. It is an autoimmune encephalitis. And, there is treatment. She had to relearn how to walk and talk, like she had a stroke. At the end Susannah ponders how many people have been mis diagnosed with a mental illness.
Then, right after I finished the movie, my friend posted an article from bp magazine about autoimmune encephalitis.
i went to a conference today. There were 32 workshops..
the first i went to was on Borderline Personality Disorder. It was very informative and i learned a lot. The next was on support groups, that was good. There were a number of organizations represented.
the last one i went to was “ask the doctors” on schizophrenia. It was an open forum for people to comment, and ask questions. There were suggested questions on the screen.
one of the questions was, “what has worked for you?” I would have loved to hear the answers to that one.
one thing that worked for me, was talking to people with similar experiences, either on-line or in person. I went to dbsa support groups, nami connections and eventually started a group affiliated with the national organization, schizophrenia alliance. I don’t run the group anymore, but i am glad it is still going.
another thing, that is a little different, was when i was very troubled with auditory hallucinations, my psychiatrist found a way to communicate. He wrote words while he spoke, circling and crossing out important words.
no, one had asked what my experience was like when i had a psychotic break. They asked about symptoms, but not what were the voices saying or what the messages were. Not until i saw a therapist who seemed interested. It felt lke a relief to be able to tell my story.
i would love if anyone would share what has helped them
I was removed from the bone marrow registry when I updated my health information. They sent me an email saying they have volunteers and it was a safety issue. I didn’t think about it until someone mentioned they were turned down to donate blood because they have schizophrenia. It is not the medications we take that are the problem. They fear we are a danger.
I was not really looking forward to donating, but with waiting lists it seems like they would not want to turn people away.
Give the gift of #stigma
I can understand that I can’t purchase life insurance. My diagnosis is associated with committing suicide. I am not unreasonable. But, assuming I am dangerous without asking any questions besides my diagnosis is infuriating