A Long Overdue Update

Image: blank wordle computer game board

I just realized I never gave an update on my Covid experience. After 19 days of isolating, I finally tested negative and was feeling better. I had given a month’s notice at work, but I was out for 3 weeks. I only worked 2 days/week, so I went back for my final 2 days. They quickly improvised and had people sign a card and ordered cupcakes. It was nice.

I am not sure what I want to do with my time, now. I have been going to an activity center that I used to work at, as a member now, and participate in a group. It is a course that ends in 2 weeks. I think I will continue going to one or two groups/week after it ends. I give talks for NAMI, National alliance on mental illness. I did one over zoom and they played it on the tv at the center.

I do want to do other volunteer work, but I don’t want to commute or commit too much time. I have some opportunities already. I stopped working mainly because I was having trouble hearing. I got hearing aids at the beginning of the year but it has been hard to adjust, I am having another hearing test and they will clean the hearing aids in November. I want to get to where I can hear well, before I commit to any type of peer support.

I like playing little computer games. I finally tried wordle and I think it is fun. I usually can get the word but it takes a number of guesses. I find it relaxing.

About a month after I got over Covid my husband and daughter caught it. My husband travels and I think he must have caught it at a conference. My daughter is super careful, but she still caught it. She felt pretty lousy, lost taste and smell. She isolated for 10 days. My husband did pretty well, he took Paxlovid with no rebound. He was better in 5 days.

I have given up on making the coconut milk yogurt for now. I am making chia pudding with coconut milk instead. It tastes pretty good. I add fruit and granola.it is really easy to make. I have a recipe for a small volume but I make more. If anyone is interested I will post the recipe. You can use other types of milk.

I saw a video on internal family systems therapy. It looked interesting. I don’t know if I would be able to connect with other parts of myself. I searched for a therapist and found one but she does not work at the company anymore. They recommended a few other therapists. I don’t think the woman on the phone understood what I was asking for. I have a zoom appointment with a therapist on Saturday. She is on my insurance plan. I like the therapist I had/have?, but he only wants to see me as needed and I think I would feel more comfortable seeing someone on a regular basis. I can’t find much on the new therapist through google. Just on the company’s website.

I had an issue finding a psychiatrist my insurance would cover. I saw one who I liked, but I they first denied the claim and eventually changed to covering. I saw a different psychiatrist in the same office. I had a bad experience the first appointment. The next appointment was better. But, I found the other psychiatrist is in network now, so I switched back. I go in November. He does therapy, too, so that could be an option and I always have the one, as needed. I think he will retire soon, also,

Brain Hemispheres and the Rest of My Week

Image Brain: colored hemispheres , right pink, left blue

My therapist emailed me this link on a man who learned late in life, through therapy,  how to use his right hemisphere and feel.  I asked why he sent it to me and he said he was sharing the importance of working with the right hemisphere. I am still confused.  Does he think I don’t use half my brain, that I am unfeeling? I see him Wednesday.  I am not sure if I should ask more or just let it go.

https://www.psychotherapynetworker.org/blog/details/1245/its-never-too-late

I have a cold. I took a test and thankfully it is not Covid. I left work early the other day and have been taking it easy. I will be fine before Monday.

I was contacted on LinkedIn to write something on anxiety for choosingtherapy.com.  I wrote a bit about coping skills.  I hope it is what they are looking for.  If anyone is interested in submitting a story,  this is the submission link https://www.choosingtherapy.com/share-your-story/

I don’t know if I have a psychiatrist. I have new insurance and mine is not on the provider list, but I filed for continuation of care which was approved. So, they agreed to cover him. Now, they are asking him to file more paperwork than he is comfortable with. They denied 2 claims. He is only charging me copays. He called my insurance provider , I called, but I have not heard anything yet. I am supposed to have an appointment this week but he will cancel if it is not covered. I did get the name of a psychiatrist on my insurance who is taking new patients but I don’t know much about him, except that he charges a lot if you don’t cancel 24 hours in advance.

My friend turned me on to a hair product. The company is Olaplex. My hair frizzes and it helps tame the curl. I am 57 and finally learning to manage my hair. My daughter has beautiful spiral curls. I just have waves but at least it is not frizzed. I don’t have any stock in the company and I am sure there are other similar products, I am just happy I found something that works for me. And, it goes with my showering habits. I wash my hair 1 x / week and shower without dealing with my hair in between.

They run support groups where I work. I asked about starting a harm reduction or moderation group or SMART Recovery, but they said they are full and they seemed to equate 12 steps with recovery with no other options. They said they will get back to me.

 

 

My Week

Image: Yorkie with words you just won a free pet portrait from I’ll shoot your pets a $250 value!

I was at a Halloween event at Hala’s Paws pet store in Mission Viejo, CA. I entered raffles and won 2 prizes. A Target gift card and a photo shoot of my dog by I’ll Shoot Your Pets located in Temecula, CA. They came over to my house to take pictures bringing a toy and treats to get his attention. Raider was pretty cooperative, but grew restless by the end. He was laying on the couch so the photographer took pictures of him there. The pictures turned out great. I had the choice of a large canvas photo, 3 8×10 prints or a ceramic mug. I have a large picture my niece made with pastel on wood, so I opted for the 8x10s. Here is the link to the photos.

https://galleries.page.link/Q9XLV

I own a small amount of shares from a company I used to work at in the 1990s. I received a package in the mail of documents that they want to buy the shares back. I want to sell. The only thing is I misplaced the certificate and it is over $100 to replace it. Then I can sell and make a small profit. My friend says it does not sound legitimate. The company is definitely buying the stocks back. He just thinks I should be able to do it all electronically. I have never sold stock or tried to replace a certificate. I have the holdings statement. I am going to look through our files this weekend and try to find the certificate.

The hearing aids are in limbo, my primary dr got them authorized but it is not with the right company, so they are working to get that straightened out. I will have them by the end of the year. I just don’t know when. They can’t order without the insurance authorization so for now I am just waiting.

I am going on a walk for NAMI Orange County, CA tomorrow. I am bringing a friend and will see people I know there. I have a fundraiser on Facebook and the Nami walks website. I have met my goal and will add to my collection of T-shirts.

https://www.facebook.com/donate/326881332539007/?fundraiser_source=external_url

https://www.namiwalks.org/participant/359276

The position I applied to transfer to changed from full time to per diem weekends so I withdrew. I will keep my eyes open. Fortunately, I like what I am doing now. When I told my friend I was anxious just deciding if I should apply he said “ don’t suffer twice”. I wish I knew how to turn off precipitatory anxiety. Now, I can relax.

Have a nice weekend!

Will it be too stressful?

Image: STRESS spelled out in scrabble

I have been stable for 15 years, but I have really decreased stress in my life. I find that when stress increases my symptoms can increase. I did not work for a few years after diagnosis. Then, I volunteered part time for years. I have been working part time for 6 years and I am doing well.

I found out about an open position at my work. It is higher pay, but more responsibility and full time. I put in a request to transfer and am waiting for an interview. I have no offer yet, but I am starting to worry if I am doing the right thing. (My opinion does not represent my employer). I want to ask my psychiatrist his opinion on taking on more, but he is out of town.. I emailed therapist but I don’t know if she will get back to me.

I have a delay with the hearing aids. The audiologist contacted my insurance and they said I have no coverage. That did not sound right, so I called. I have a $1000 allowance but it needs authorization from my medical group. I asked my primary care and she said she is not the one to ask, I had been referred to an ENT when they sent me to the audiologist so I don’t know if the ENT is supposed to get authorization. I am hoping I get them before the end of the year.

I am still doing TikTok videos on coping with schizoaffective disorder. Username Schizoaffective Dog Mom. I used to do live Periscopes. Few people came, but it was fun. TikTok has a live feature, but you need to have 1000 followers (I have 50). I guess it does not make sense to go live with no audience, but I am a little bummed I can’t use that feature. I have enjoyed viewing live videos.

What I Have Been Up To Lately

I had therapy last week. I started seeing this therapist after the pandemic, so all my sessions have been virtual. I forget what she asked but I mentioned I remember mistakes from the past, 20, 30 years ago or more and they torment me. She wanted me to share but I am not comfortable with that. I feel such shame and they were mistakes that I feel are unforgivable. If I did not feel shame there would be something wrong. But, I don’t want to delve into them.

My father did not believe in mental health treatment even though schizophrenia, schizoaffective disorder and bipolar run in our family. When I started therapy he discouraged it saying talking about the past just makes everyone sad. I did not understand what he meant until now.

My therapist wants me to work on forgiving myself.  I have to explain to her that some of these things are best kept hidden.

 

 

I have been able to stay alcohol free after my planned intoxication in April.  My plan is sobriety until our wedding anniversary in October.  It was pretty easy to get back to it.

 

 

I posted a link to an In Our Own Voice presentation I did for NAMI, National Alliance on Mental Illness, in a different post. I have not been speaking much lately. I saw a different program by NAMI called VOICES. It is geared towards first responders. I signed up to be a speaker, but am having trouble figuring out where to start. My initial interaction with mental healthcare and police was not until I was 39, but since mental illness runs in my family that was not foreign.

My brother had a psychotic break in college at 20 (I was 15). He refused treatment and would get picked up by the police for 72 hour observational holds in the late 70s. His is a sad story. He was severely symptomatic for 6 years when he finally was placed on a different medication that he responded well to. But, he started becoming symptomatic again, paranoid, edgy, and probably needed his medication adjusted. He went to Yosemite while symptomatic and fell at a waterfall. I don’t know if it was accidental or not, but he died from the fall.

This is supposed to be a story of hope, but it is part of my story.  If I had not seen him so ill for so long I may not have accepted treatment, but I did not want to be stuck in psychosis like he was.  I think it is okay for first responders, but not sure if it will scare the general public who may be worrying about their own children.

My story is much different.  I did go in and out of psychosis for 3 years, but I have been stable since 2006.  I have not been hospitalized for 16 years.  I am married, have healthy grown children, work part time.  I still have some doubts about what was real from the past, but I can function.

 

In Our Own Voice Presentation

Yesterday I did a presentation for NAMI Orange County on my recovery.

https://us02web.zoom.us/rec/share/8I-z9RKNONCJ958C7klIYBjCf3ZzCXs_BD743CKZD0QUzGcCtPbtjjVcYygq5hk.nKTSbzmA_Jj3DrvG

Passcode +6$T%coQ

Slippery Slope

Photo of hamster

I have stopped going to AA meetings.  I felt pressured to attend meetings and pray daily.  I am not religious and I did not find that part helpful.  There are things I gained.  I don’t think I would have stayed sober this long without starting with AA.  The accountability was helpful.

I belong to a couple of Facebook pages. Secular AA, Moderation Management and HAMs. (Harm Reduction, Abstinence and Moderation). We are called HAMsters. I am leaning towards trying to moderate drinking to about two times a year. We are going out of town over my birthday. Someone gave us a bottle of champagne and I plan to have some. Then I plan to go alcohol free until our wedding anniversary in October.

My therapist warned me it is a “slippery slope” and how do I not know I won’t go back to drinking more often. And, that I plan to drink because we have champagne makes no sense to her.  I feel like if I have a plan, I can stick with it.  And, that AA is not the program for me because I want to be able to drink occasionally, like twice a year.  I won’t be alone.  I won’t be driving.

Am I just asking for trouble?

Hearing What I Needed to Hear

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90 days sober!

I went to a zoom AA meeting and someone said that you don’t try to control things that are already under control.  That was what I needed to hear.

I had all of these rules and thought my drinking was under control because: I didn’t drink and drive, I only drank in the evening, I got chores done before drinking, although I was pushing even those limits.

But, normal people just need one rule. Don’t drink too much.

I listed in a previous post how my life was unmanageable. I have to refer back to it to remind myself. I still have cravings even though I logically have decided I don’t want to continue drinking. I just remind myself of reasons I don’t want to drink.

I have schizoaffective disorder and I don’t want to interfere with stability, and alcohol does not play well with my medications. And, I am not very productive at home if I am drinking. Also, I think I was walking around with a mild hangover. My head feels more clear, I feel lighter now.

60 Days

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I made it to 60 days sober. 

I heard someone say their higher power comes to them through meditation.  That is something I can believe in.  Some kind of intuition, or inner wisdom.  I can’t define my higher power.  I don’t think I have to.  I am finished with step 2.  My sponsor has me reading stories from the Big Book.  We go over them once a week.

I have bought a kindle version and paperback of the Big Book.  Neither of them match pages with the hardback,  I am debating getting another copy. The kindle is convenient because I can take it anywhere easily, but it is a totally different version.  Different stories.  The paperback has the same content, just different page numbers.

My mood has improved. I just had some sad days. I guess everyone does.

My head is spinning

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I have been thinking of a higher power and talking with people and now I don’t know what to think. My sponsor says all I have to do is believe something, anything, outside of myself could, possibly restore me to sanity. That I can do, but choosing what to believe in is more complicated. I have trouble believing in a man in the sky. I started with the Universe or nature. I feel more connected with the world outdoors. But, I don’t know how the Universe could help me. They say you can have the fellowship of AA as your higher power but I don’t know about turning my will over to the group

I talked to.my therapist about my issue with psychosis and she reassured me that it is unlikely I will start getting delusional. It has been 15 years since my last psychotic episode. She thinks my issue is with religion I am getting support and staying sober. I don’t like going to meetings every day and calling my sponsor everyday. My therapist thought maybe I should cut back but do something with that time I have trouble expressing what I want. My sponsor said I don’t have to do anything and that they are suggestions.

The meeting tonight was on step 2 and our higher power. People spoke about their faith or issues with religion. One woman said she can’t define her higher power but it helps her. I have been reading “Untamed” by Glennon Doyle. In the book she listens to an inner wisdom that she calls God. I know my inner voice could help me, but that is not something outside of myself.

My friend does not think I have a problem and should not identify with an illness. That gets me wondering if I really need something outside to restore me. Is that something you can do on your own? I think my mind is shattered in a way and I have been searching for someone/ something to repair it.

So far I am staying with AA because it is not hurting anything and I am sober